What is lupus?
Lupus can affect many parts of the body, including the skin, joints, blood, kidneys and brain. Lupus activity may fluctuate, with periods of increased disease activity (flares) and times when symptoms are more settled. Childhood-onset lupus most commonly develops during the teenage years and is more common in girls.
Lupus is not contagious and is not caused by anything a child or their parents could have prevented.
Signs to look out for
- A rash across the cheeks and nose, or rashes after sun exposure
- Tiredness and fevers without an obvious cause
- Persistent joint pain or swelling
- Mouth ulcers or hair loss
- Swollen legs or puffy eyes, which can be a sign the kidneys are involved
- Phasic colour change of the fingers triggered by the cold
How lupus is diagnosed
Diagnosis is based on symptoms and examination, as well as blood and urine investigations. These tests look for particular antibodies, inflammation, blood count changes and signs of kidney involvement.
How lupus is managed
Treatment aims to control inflammation, prevent flares and protect the organs from long-term damage. Children with SLE are prescribed hydroxychloroquine, and will often require additional medicines to calm the immune system, including an initial course of corticosteroid.
Exposure to ultraviolet (UV) light can damage skin cells and trigger a lupus flare. Consistent sun protection, including protective clothing and broad-spectrum sunscreen, plays an important role in managing lupus.
Your child's plan is tailored to them and reviewed regularly.
Kidney checks matter
Lupus can affect the kidneys without causing symptoms at first. Regular urine tests and blood pressure checks are an important part of care, even when your child feels well.
Common questions
Is lupus contagious?
No. Lupus can't be caught from or passed to anyone else.
Will my child need treatment long-term?
Lupus is a chronic condition, requiring ongoing treatment and regular monitoring to keep the disease under control and protect against organ damage. Treatment needs can change over time, with some children requiring more intensive treatment during flares and less medication when the disease is well controlled. Even during periods when your child feels well, ongoing monitoring and treatment are important, as lupus can remain active without obvious symptoms.
Do we need a referral?
Yes. A referral from your GP or specialist is needed for a Medicare rebate. Please address this to Dr Jessica McGrath at Arc Specialist Care.
Seeing us in Brisbane
Ask your GP or specialist for a referral to Dr Jessica McGrath at Arc Specialist Care, then call us to book.
This page is general information only and is not a substitute for advice about your child's individual situation. Please speak with your doctor about your child's care.